C19-YRS for Researchers

A complete and customisable digital solution for the design, delivery, and management of clinical research studies into long-term conditions

  • Recommended by NHS England, NHS Scotland and NICE
  • Co-developed by patients, The University of Leeds, Leeds Long COVID rehab team, and ELAROS
  • Used to deliver NIHR Long COVID Research

About

Scoring of symptom severity and functional ability 

Easy to use, secure and scalable platform to oversee patients

User friendly with visual aids for patients to monitor their progress

A not-for-profit solution for all NHS organisations

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The system has been developed further to pivot towards supporting clinical research projects on long-term conditions, such as COPD. 

Research teams of varying size are able to configure the platform’s features based on a study’s protocol, desired duration and participant information.

The Portal

About the Web Portal

Digital C19-YRS offers an online web portal for research organisations to manage their study cohort across one or more localities.

From here, staff can set up new participants, configure different PROMs, view results, and access powerful reporting tools for the individual participant, the overall cohort, or a pre-defined group of users.

Reports are automatically generated which can be exported for external storage.

The system is hosted in the cloud, meaning no installation is required.

Pseudonymised data can also be viewed by staff with lower access rights. 

The App

About the App

Participants have access to their own dedicated profile on mobile or online via our web app, meaning even those without personal devices can access the C19-YRS online; independently, with a carer, or family member as part of a telephone appointment.

Participants can use the app to complete assessments, track progress and follow study protocols.

Key Features and Benefits

  • Access to clinically validated PROMs for long Covid
  • Access to other common PROMs and PREMs prescribed by clinics, including the EQ-5D-5L, PHQ9, GAD7, FFT and more Adapted Autonomic Profile (aAP)
    Diary for dysautonomia
  • Access to relevant support resources related to study or clinical practice if running concurrent to the study
  • Dedicated profiles for participants
  • Unique, secure login
  • Available on mobile
  • Available online via a web app on tablet or desktop for those without access to mobile
  • Accessible by staff to complete with participants via telephone
  • Complete assessments
    independently, with a carer, or with staff in a telephone appointment
  • View assessment history and track progress over time
  • Simple, yet insightful graphs to understand changes in symptom severity
  • Goal setting and e-diaries
  • Configurable automatic reminders
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Features for Researchers

  • Set up multiple large-scale, multi-site research projects to run separate or concurrently to clinical practice
  • Customisable PROMs according to protocol
  • Automatic reminders for completion
  • Configurable e-consenting process
  • Automatic pseudonymisation of data based on participant consent
  • Access to PIS and study material within the app
  • Direct anonymous communication with participants
  • Interactive reporting tools to analyse different demographic groups and compare cohorts

Benefits for Researchers

  • Research staff-time reduced by up to 90%
  • Improved compliance and adherence to study protocol
  • C19-YRS heavily cited in literature for comparison
  • Numerous configuration options
  • Automatic filtering of participants that give consent
  • Time saving in recording consent manually
  • Compliance with necessary data protection and ethical requirements
  • Continous, enhanced, accelerated data analysis, auditing and evaluation
  • Automatically generate reports for individual participants or study cohort

Ongoing Research Projects

LOCOMOTION Long COVID Study

The University of Leeds are leading a £3.4 million multi-national research study on Long Covid funded by the NIHR. It includes 8 UK Universities and 10 NHS sites, with ELAROS named as its technology partner. The digital C19-YRS system is central to the project and will accelerate the remote collection of patient data collection from 3 British nations.

More information available in the Research Brochure

Download here

Contact

To book a demo, ask questions or for technical support, get in touch!

Email us: c19-yrs@elaros.com

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